Each day is a little better than the day before.
My weight is stable at 79.4 kg (175 lbs). I’m happy with that as its a struggle finding things to eat that don’t give me nausea. My daily eating pattern going forward is five to six small meals. The portions on the children’s menu is just about right. I see a lot of doggie bags in future restaurant outings.
Last Monday I had the stent removed. As soon as I was alert after that endoscope, I had a barium swallow. Everything is looking good. There are no leaks.
My hemoglobin is up to 107 which is good for me. I did have an iron infusion on Tuesday and a B12 shot. B12 comes from meat, fish and eggs and is primarily absorbed in the stomach. Since I no longer have a stomach, I’ll have B12 shots on a fixed schedule which is yet to be decided. We need B12 to help shape hemoglobin to improve our capacity to transport oxygen.
On Tuesday I had a long conversation with a nutritionist. She offered a number of good suggestions on how to improve my diet. I’ve had a lot of diarrhea and learned that cold food like popsicles can be a trigger.
On Wednesday, I had a long conversation with Dr. Wallace who is the lead on my medical team and my thoracic surgeon. She is pleased with my progress and satisfied with how everything looks inside. I mentioned to her that I had a funny experience with coffee. I haven’t had any since before the surgery and I made it with the same brand and coffee maker I’ve always used. The taste was totally foreign and not even close to how I remember it. I also had some chicken noodle soup earlier this week that tasted more like clam chowder. Most things taste as I’d expect and there is no explanation for why coffee and chicken noodle soup did not. Ah well.
The news from Dr. Wallace is that she got all of the cancer in my stomach and esophagus. I’d like to say I’m totally cancer free. However, there is a small irregularity on my liver. I’ll have a PET scan within two weeks and likely a biopsy. This is a cause for concern but no a cause for panic. Should it turn out to be a matastiscied new cancer location, it is treatable. I’m not done yet.
A always, thanks for being at my side throughout this journey. Your support and God holding my hand has gotten me through the rough sections.
Peace, Love and Laughter